When did you begin work on Curing Perfect? What made you decide that you wanted to get involved?
Approximately 1 year ago our producer David Parker brought in an article that claimed Down Syndrome could be cured. We discussed this in length and I thought it was very interesting. It made me think about my condition which is incurable and it make me think about the future and what could happen.
Can you explain a little about how the project began to take shape? What was the planning process like?
The project started off slow because we needed to make some connections. Our Director Liz Hall had a connection who got us in touch with Birmingham University. David put together a team of people that would work well together and when we found out we got the funding we employed a new producer who supports the meetings.
What is your exact role within the project, and what does a typical day look like for you?
I am the speaker, the one with the big gob! My role is to debate and build up a discussion. For example when we go up to our partners in Birmingham I make sure the conversations flow and we stay on target.
How has it been to combine science with the arts? Is it the first time you have worked in this area?
It has been interesting and challenging at times to stay focused. When the conversation gets really detailed about scientific facts I find myself drifting off. However, it is something I want to work on. I picked up that it is very difficult to find stem cells which I didn't realise. I am now looking forward to the Curing Perfect activities at the Festival.
What more can the arts to do be inclusive of people with learning disabilities?
As I am approaching 25 I am worried I will not have enough time to complete my Arts Award Silver and Gold. I did Bronze and I really enjoyed it. I about to start my Silver Award. Sometimes learning disabled people come to the arts later in life and don't have the support. I would like there to be more schemes and support for older people in the arts.
What advice would you give to anyone who was looking to get involved in a project like this?
Be willing to put in some commitment and interesting things will come out. Learning Disabled artists don't often get opportunities likes this. It's great to take part in a project that the public gets to see and to work with real life doctors actively and not just be a case study.
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